Muscular Dystrophy Association Marks Rare Disease Day by Spotlighting Community Stories Driving Progress in Research, Care, ...

Nelson's twin daughters, Ocean Jade and Story Monroe, have been diagnosed with spinal muscular atrophy (SMA) Type 1 ...

The mother of a four-year-old boy with a rare muscle disease says screening newborn babies for the condition could "save ...

The singer shared an emotional update about her twins’ health on Sunday.

"Monumental" is how Ashley E. Webb, MD Assistant Professor, Department of Pediatrics, Division of Child & Adolescent Neurology Neuromuscular Program Director, UTHealth, University of Texas Health ...

Singer Jesy Nelson has opened up sharing that her twin daughters have been diagnosed with Spinal Muscular Atrophy, but what is the condition?

NBS programs are fairly new in the U.S., so not much is known about variations among them or about provider practice patterns for newborns with SMA. In a survey of providers and state NBS programs, ...

The SMA treatment team also includes rehabilitation professionals such as respiratory, physical, occupational, and speech therapists. Rehabilitation treatment involves care related to positioning, ...

We were unable to process your request. Please try again later. If you continue to have this issue please contact customerservice@slackinc.com. Topline results from a phase 3 clinical trial showed an ...

Spinal muscular atrophy explained after Jesy Nelson reveals her twins’ diagnosis - The singer shared an emotional update about her twins’ health on Sunday and that ‘time is of the essence with this di ...

LITTLE Mix star Jesy Nelson has revealed that her baby twins have been diagnosed with a severe form of Spinal Muscular Atrophy. In a heart-breaking Instagram post, the singer said her daughters could ...

Days after the Little Mix alum shared her and fiancé Zion Foster’s twin daughters, 7-month-old Ocean Jade and Story Monroe, were diagnosed with Spinal Muscular Atrophy Type 1 (SMA)—a genetic disorder ...