After a string of doctor visits and tests, the condition is given a name: Nemaline Myopathy. The name might sound familiar to many. Recently, the former Chief justice of India, DY Chandrachud ...

The couple lost their six-day-old daughter Milli to Nemaline Rod Myopathy – an incurable and rare genetic disorder – in July last year, with the emotion of the loss heightened during the ...

She was diagnosed with nemaline rod myopathy at birth, which causes severe muscle weakness that affects her mobility and speech Her marathon journey began in 2009 when her mom and brother did ...