The couple lost their six-day-old daughter Milli to Nemaline Rod Myopathy – an incurable and rare genetic disorder – in July last year, with the emotion of the loss heightened during the ...
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Disabled runner’s $1million marathons – learning to run after being pushed in chairShe was diagnosed with nemaline rod myopathy at birth, which causes severe muscle weakness that affects her mobility and speech Her marathon journey began in 2009 when her mom and brother did ...
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