Patient groups typically form around specific disease areas with an aim of advocating for improved treatments and therapies for patients who fall into those categories—and they’re feeling the ...

SRF (SYNGAP1), RSRT (Rett), CACNA1A, STXBP1, Loulou (CDKL5), & KCNQ2 Cure (KCNQ2) collaborate to support Dr. Devinsky’s research for clinical trial readiness. Co-funded by multiple organizations, this ...

Distress and isolation frequently affect individuals with cancer and oncology care providers. Both oncology care teams and patient communities play a crucial role in offering support during ...

Since OpenAI’s official launch of ChatGPT, we have seen a sharp increase in the healthcare industry’s adoption of AI tools across different use cases, from improving diagnostic precision and ...

Advocacy groups for patients with neurologic disorders have become a common feature in the landscape of drug and device development and federal research funding allocation. On Capitol Hill, advocates ...

Receiving a breast cancer diagnosis can be a life-altering experience, and it can also feel like you’re the only one going through this. But about 316,950 new cases of invasive breast cancer will be ...

Between 2021-2024, Joel Lexchin received payments for writing a brief on the role of promotion in generating prescriptions for a legal firm, for being on a panel about pharmacare and for co-writing an ...

Four years ago, Barbara LaCoste began seeing blurry spots in her central line of vision. During an eye exam at the John A. Moran Eye Center, the 78-year-old received a diagnosis that was all too ...

NEW DELHI: A leading patient group and families of children with ultra-rare diseases across India have appealed to Prime Minister Narendra Modi to direct the Union Health Ministry to urgently ...