The use of social media, specifically Facebook groups, in clinical practice can help healthcare providers incorporate an effective patient support community, according to a pilot study published in ...

Patient groups typically form around specific disease areas with an aim of advocating for improved treatments and therapies for patients who fall into those categories—and they’re feeling the ...

Distress and isolation frequently affect individuals with cancer and oncology care providers. Both oncology care teams and patient communities play a crucial role in offering support during ...

Kim Newcomer, director of volunteers, Colorectal Cancer Alliance, shares findings from a survey on colorectal cancer care inequities, and how to address these challenges. In the second part of this ...

SRF (SYNGAP1), RSRT (Rett), CACNA1A, STXBP1, Loulou (CDKL5), & KCNQ2 Cure (KCNQ2) collaborate to support Dr. Devinsky’s research for clinical trial readiness. Co-funded by multiple organizations, this ...

Patient organisations and charities are at risk of aligning their interests with their corporate funders even when this doesn't benefit their members, according to a new study led by the University of ...

Caring for a loved one with dementia is an all-encompassing journey fraught with emotional, physical, and mental challenges. The weight on caregivers is profound, often leading to feelings of ...

Between 2021-2024, Joel Lexchin received payments for writing a brief on the role of promotion in generating prescriptions for a legal firm, for being on a panel about pharmacare and for co-writing an ...

A conference at the European Parliament heard expert presentations on the evidence that medical work should be formally ...

We welcome new members to our support group. Ask about online participation options if you can't attend in person. Let us know if you're interested. We can give you the timings and discuss costs and ...