In the current interconnected health research ecosystem, comprehensive and secure access to health data is key to accelerate drug discovery and improve patient outcomes. On 9 October 2025, Germany ...

In the early 2000s, Paul Harris, a research informatics faculty member and bioengineer at Vanderbilt University Medical Center, noticed a pressing problem. While working with research teams, he found ...

Medical genetics company Invitae released a first-of-its-kind data use transparency and impact report today detailing the impact of patient data on genetic research. The report comes as concerns about ...

– Company achieves over 1 million ClinVar submissions to advance science and patient care – Unlike most companies, Invitae offers patients a choice on whether or not to allow access to their ...

An emerging model is quietly turning Canadian patient medical records, and patients themselves, into lucrative commercial ...

NIH has issued the Data Management and Sharing (DMS) Policy to promote the sharing of "scientific data". Sharing scientific data accelerates biomedical research discovery, in part, by enabling ...

Brianne Selman is on the Canadian Federation of Library Associations Copyright Committee. Mark Swartz does not work for, consult, own shares in or receive funding ...

Data from a 5-year follow-up of outcomes after transcatheter edge-to-edge repair of severe mitral regurgitation, as compared with outcomes after maximal doses of guideline-directed medical therapy ...