资讯
Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...
Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...
For people with spinal muscular atrophy (SMA), these changes could make flying more manageable. But air travel may still feel like a major undertaking when you rely on a wheelchair. Kevan Chandler, ...
A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...
Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...
Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.
Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.
Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...
Type 0 The rarest and most severe form of the disease, SMA type 0 is defined by symptoms that are apparent before birth, while the fetus is still in the womb. Babies with this type of SMA usually need ...
Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...
How is Evrysdi administered in SMA? Evrysdi can be given as a flavored liquid in a solution taken orally or via a feeding tube. It recently became available as oral tablets for patients 2 and older ...
SMA type 4 life expectancy SMA type 4 is the mildest form of the disease and one of the rarest, affecting fewer than 1% of everyone living with SMA. Type 4 symptoms often begin in adulthood, usually ...
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