I got dangerously sick while waiting for double-lung and liver transplants. But then I got a second chance at life after starting Trikafta, even though I have two rare mutations.

I’ve found that one of the greatest misconceptions about living with a chronic disease is that it is purely a physical battle. Every difficulty — physical or otherwise — manifests emotionally. For ...

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS. WASHINGTON, D.C. (March 6, 2025) — ...

In a letter to the U.S. Food and Drug Administration, the Cystic Fibrosis Foundation responded to the agency’s draft guidance entitled “Pulse Oximeters for Medical Purposes — Non-Clinical and Clinical ...

Living with cystic fibrosis means constantly navigating the emotional and physical strain of waiting. Despite the exhaustion and uncertainty, waiting reminds us of our ability to endure in the face of ...

I found myself crying, staring at my therapist sitting on the other end of Zoom. And it was not in a subtle sort of way where the tears prickle in the corner of your eyes, and you can sniffle your ...

My name is Schyler Kline. I am an adult with cystic fibrosis, and I am an elementary school teacher. My experience with teaching while having CF has been quite diverse over the years. Seven years ago, ...

On February 20, more than 150 advocates from across the country, including nearly 25 adults with cystic fibrosis, met with members of Congress and their staff during the Foundation’s 18th annual March ...

When I began my journey to earn my Doctor of Pharmacy degree, I knew the road ahead would be challenging. In fact, it was so challenging that I often sat there worrying and anxiously crying about ...