资讯

Cystic Fibrosis Foundation1月
CF Foundation Condemns Senate-Passed Reconciliation Bill
Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...
Cystic Fibrosis Foundation7 天
My Ironman Journey With Cystic Fibrosis
Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
Cystic Fibrosis Foundation9 天
Gene Therapy for Cystic Fibrosis
Cystic fibrosis is caused by mutations in the gene responsible for producing the cystic fibrosis transmembrane conductance regulator (CFTR) protein. For this reason, scientists are exploring ways to ...
Cystic Fibrosis Foundation3 年
Chest Physical Therapy - Cystic Fibrosis Foundation
With chest physical therapy (CPT), the person gets in different positions to use gravity to drain mucus (postural drainage) from the five lobes of the lungs. Each position is designed so that a major ...
Cystic Fibrosis Foundation5 天
Managing CF and OCD
Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...
Cystic Fibrosis Foundation2 年
CFTR Modulator Therapies - Cystic Fibrosis Foundation
Cystic fibrosis transmembrane conductance regulator (CFTR) modulator therapies are designed to correct the malfunctioning protein made by the CFTR gene. Because different mutations cause different ...
Cystic Fibrosis Foundation3 年
Annual Reports and Financials - Cystic Fibrosis Foundation
View our past annual reports and financials. The Cystic Fibrosis Foundation, a 501(c)(3) nonprofit organization, has unrestricted financial reserves of about 11 times its 2025 operating budget.
Cystic Fibrosis Foundation3 年
Mucus Thinners - Cystic Fibrosis Foundation
If you use a bronchodilator, use it before inhaling hypertonic saline.If your care team has prescribed mannitol (Bronchitol), use a bronchodilator before taking it. Then, if you use dornase alfa ...
Cystic Fibrosis Foundation1月
How My Filipino Heritage Guides Me Through CF
A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.
Cystic Fibrosis Foundation4 年
Managing CF - Cystic Fibrosis Foundation
Regular physical activity and good nutrition are important — especially when you have cystic fibrosis. By eating a high-calorie, high-fat diet,taking vitamins and mineral supplements, and staying fit, ...
Cystic Fibrosis Foundation4 年
Maryland Chapter - Cystic Fibrosis Foundation
The Maryland Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Cystic Fibrosis Foundation9 天
CF Awareness Month - Cystic Fibrosis Foundation
During CF Awareness Month this May, we are inspired by every person with cystic fibrosis and members of the CF community who support them. This year, we are especially proud to celebrate our 70th ...