Columnist Brianna Albers tends to make mountains out of molehills, a sure sign that living with SMA has resulted in illness anxiety.
Panelists discuss how the needs of older patients with spinal muscular atrophy (SMA) differ from infants, focusing on independence, education, career goals, fatigue management, and quality of life ...
MDA Holiday Retail Campaign #GiveStrength Muscular Dystrophy Association’s 2025 Holiday Retail Campaign launches in thousands ...
Access to timely treatment for spinal muscular atrophy (SMA) remains a challenge, with barriers including delays in diagnosis, frequent treatment needs, and insurance coverage gaps, which impact ...
Novartis is telling people living with spinal muscular atrophy (SMA), a rare neuromuscular disease, to “SMAsh” their limits in a recently-launched campaign. SMA is a rare genetic neuromuscular disease ...
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Scholar Rock (NASDAQ: SRRK), a late-stage biopharmaceutical company focused on advancing innovative treatments for spinal muscular atrophy (SMA), cardiometabolic ...
Affordable Risdiplam is now within reach for Spinal Muscular Atrophy (SMA) patients in India, thanks to a Delhi High Court ...
What happens when the care you need to survive just isn’t available? Across the U.S., millions of disabled people are facing a growing caregiver shortage—a crisis that makes independent living harder, ...
“I remember my mom picking me up from pre-school, and I was crying because I couldn’t run in the grass with the other kids,” recalls 17-year-old Charlie in a new Novartis video. And now, “I want to ...
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