The American Journal of Managed Care

Unmet Needs of Older Patients Living With SMA

Panelists discuss how the needs of older patients with spinal muscular atrophy (SMA) differ from infants, focusing on independence, education, career goals, fatigue management, and quality of life ...

Muscular Dystrophy Association Launches Holiday Retail Campaign in Thousands of Retail ...

MDA Holiday Retail Campaign #GiveStrength Muscular Dystrophy Association’s 2025 Holiday Retail Campaign launches in thousands ...
The American Journal of Managed Care

Breaking Down Hurdles in SMA Treatment

Access to timely treatment for spinal muscular atrophy (SMA) remains a challenge, with barriers including delays in diagnosis, frequent treatment needs, and insurance coverage gaps, which impact ...
MM&M

Novartis is helping patients ‘SMAsh’ their limits with advocacy campaign

Novartis is telling people living with spinal muscular atrophy (SMA), a rare neuromuscular disease, to “SMAsh” their limits in a recently-launched campaign. SMA is a rare genetic neuromuscular disease ...
The Week

'A huge relief for us': SMA patients welcome Delhi HC verdict allowing generic Risdiplam

Affordable Risdiplam is now within reach for Spinal Muscular Atrophy (SMA) patients in India, thanks to a Delhi High Court ...
Business Wire

Scholar Rock Submits Biologics License Application (BLA) to the U.S. FDA for Apitegromab as ...

CAMBRIDGE, Mass.--(BUSINESS WIRE)--Scholar Rock (NASDAQ: SRRK), a late-stage biopharmaceutical company focused on advancing innovative treatments for spinal muscular atrophy (SMA), cardiometabolic ...
Pharmabiz

Patient groups and supporters welcome Delhi HC's order on SMA drug

Patient groups and supporters welcome Delhi HC's order on SMA drug: Our Bureau, New Delhi Friday, October 10, 2025, 10:45 Hrs [IST] Patient groups and organisations in favour of a ...