Answers to some of the more common questions about the disorder. — -- Now a feature-length film starring Julia Roberts and Owen Wilson, "Wonder" is based on a children’s novel by R.J. Palacio and ...

Nathaniel Newman, who has Treacher Collins, has undergone nearly 60 surgeries. — -- It was a frigid February night in New York City when Magda Newman was in labor with her first child. With her ...

A 10-year-old Texas boy with a genetic disorder that affects the structure of the face died two days after being anesthetized for a routine dental procedure. Marcos Tirado received the anesthesia at ...

She wore a long-sleeve shirt patterned with planets, rockets and the infinite dreams of space travel. A white bow adorned by two hearing aids sat lightly atop her head, completing an outfit that ...

Michael Rape, a UC Berkeley researcher, with Francis Smith during a Sept. 25 visit to discuss how Rape's research might help others with Smith's craniofacial disorder, Treacher Collins Syndrome. Smith ...

Elizabeth Vargas on the inspiring life of a boy living with Treacher Collins. — -- One of my favorite things to do with my children is to read to them. A few years ago, the bedtime book was ...

The death of a 10-year-old Texas boy following a routine dental procedure last September has been ruled accidental, caused by a genetic disorder that affects the structure of the face. Marcos Tirado's ...

2017’s Wonder is the epitome of a feel good, coming-of-age movie. It’s the story of a boy named August Pullman (Jacob Tremblay), a boy whose Treacher Collins syndrome often causes people to stare at ...

Jonathan “Jono” Lancaster has penned a book, Not All Heroes Wear Capes, about his journey Cara Lynn Shultz is a writer-reporter at PEOPLE. Her work has previously appeared in Billboard and Reader's ...