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sicklecellanemianews
4 小时
SCD patients can access Casgevy via England’s public health system
Vertex has entered a reimbursement agreement with NHS England enabling eligible SCD patients to access Casgevy in the public ...
sicklecellanemianews
4 天
Reminiscing about the old me as I look to the future
As columnist Mary Shaniqua looks to the future, she remembers when she was far more active — and wonders if that could be a ...
sicklecellanemianews
12 天
Beyond my breaking point: My hypothyroidism diagnosis
Columnist Oluwatosin Adesoye had faced many sickle cell complications, but her hypothyroidism diagnosis was, at first, ...
sicklecellanemianews
11 天
Guest Voice: Moving, literally, in the right direction for sickle cell care
After moving from Sierra Leone to London, guest columnist Richard Bayliss received a proper diagnosis and care plan for his ...
sicklecellanemianews
14 天
Companies partner to develop oral treatments for SCD, other diseases
Immvention Therapeutix is partnering with Novo Nordisk to develop oral treatments for sickle cell disease (SCD) and other ...
sicklecellanemianews
12 天
Brains of young adults with sickle cell look older than their actual age
The researchers found that people who were economically deprived, even in the absence of sickle cell disease, had more ...
sicklecellanemianews
7 天
First patient enrolled in Phase 1 trial testing fostamatinib for SCD
The first patient has been enrolled in a Phase 1 trial by the NHLBI that's evaluating fostamatinib as a treatment for sickle cell disease.
sicklecellanemianews
5 天
SCD gene-editing therapy Casgevy now being offered at CHLA
With the addition of Casgevy, Children’s Hospital Los Angeles now offers two gene therapies for sickle cell, the first being Lyfgenia.
sicklecellanemianews
11 天
Richard Bayliss,
Richard Bayliss is 44 years old and has sickle cell disease with hemoglobin SS disease. He’s in the final year of a master’s ...
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